Maximizing the Impact of Public Engagement in Policy Development: Informing the Use of Personal Data in Biomedical Research

The NIH Office of Science Policy (OSP) will host a webinar to discuss its approach to maximizing the impact of public engagement in the policy making process. The webinar will address the recent recommendations of the Novel and Exceptional Technology and Research Advisory Committee (NExTRAC) and OSP’s commitment to engage with individuals and communities when considering policy matters.

Webcast

https://videocast.nih.gov/watch=53839

Agenda

Draft Agenda

Materials

(Some background documents have been provided in Spanish, as a community conversation was held in Spanish)

Webinar Summary and Community Conversation Summary Feedback
Webinar Summary and Community Conversation Summary Feedback (Spanish)

Contact

For general questions:

Email: SciencePolicy@od.nih.gov

ASHG Session: What You Need to Know About the NIH Genomic Data Sharing Policy

THIS EVENT IS RESERVED FOR PARTICIPANTS ATTENDING THE AMERICAN SOCIETY FOR HUMAN GENETICS (ASHG) ANNUAL CONFERENCE. YOU MUST BE REGISTERED TO ATTEND THE ASHG ANNUAL MEETING TO REGISTER FOR THIS SESSION

This session will give an overview of the NIH Genomic Data Sharing (GDS) Policy that sets forth expectations that ensure the broad and responsible sharing of large-scale human or non-human data. The GDS Policy applies to all NIH-funded research that generates large-scale human or non-human genomic data as well as the use of these data for subsequent research. The ancillary meeting will also provide in-depth understanding of GDS Policy privacy protection when working with human genomic data and navigate attendees through the recent implementation changes to harmonize with the NIH Data Management and Sharing (DMS) Policy (NOT-OD-22-198, NOT-OD-21-013). This is a great opportunity for ASHG attendees to meet experts from NIH and discuss GDS Policy questions.  

Speakers: Cheryl Jacobs, Ph.D., Team Lead, NIH Genomic Data Sharing Policy, Office of Science Policy and Julia Slutsman, Ph.D., Director, NIH Genomic Data Sharing Policy Implementation, Office of Extramural Research.  Website: https://sharing.nih.gov/

Registration

There is no cost to attend this event.  However, pre-registration is strongly recommended.  To register for the event, please provide the information below.

Contact

For general questions:

Email: SciencePolicy@od.nih.gov

Contact: Danyelle Winchester
Email: danyelle.winchester2@nih.gov  

National Science Advisory Board for Biosecurity (NSABB) Meeting

Webcasts

(teleconference meeting only)

Agenda

Meeting Minutes

Slides

Additional Files

For accessibility assistance with these files, please contact: SciencePolicy@od.nih.gov.