Event Month: February

NIH will host a virtual, public listening session to hear community feedback on the NIH Plan to Enhance Public Access to the Results of NIH-Supported Research (NIH Public Access Plan). The NIH Public Access Plan is currently available for public comment through a Request for Information that NIH issued in February 2023. Written RFI responses on the NIH Public Access Plan will continue to be accepted until April 24, 2023.

Webcast

• https://videocast.nih.gov/watch=49504

Agenda

• Listening Session Agenda

Supplemental Information

• NIH Public Access Plan RFI
• Comment Form for NIH Public Access Plan RFI

Information on How to Provide Oral Comments

Members of the public can sign-up to provide oral comments at the listening session by emailing [email protected].  When requesting to provide oral comments, please provide:

• Name
• Professional Affiliation (optional/if applicable)
• Topic(s) of Comment

The RFI for the NIH Public Access Plan lists specific areas of interest for which NIH requests additional feedback: (1) equity in publication opportunities for NIH-supported investigators, (2) equity in access and accessibility of publications, (3) methods for monitoring evolving costs and impacts on affected communities, and (4) considerations to increase findability and transparency of research. Please indicate if your comments involve any of these topics. Comments do not need to be limited to the four topic areas listed in the RFI comment form, but comments should relate to one or more aspects of the NIH Public Access Plan.

Slots for public comments will be provided in the order they are received until all slots have been filled. Requests to provide comments at the listening session must be received no later than April 10, 2023.

Please note that the listening session will be broadcast live, recorded, and posted on the OSP website, and a transcript of the listening session will be prepared. The transcript of the listening session may also be posted to the OSP website without redaction. As such, please do not include any information in your comments that you do not wish to make public. Proprietary, classified, confidential, or sensitive information should also not be included in your comments.

The NIH will be holding a workshop on Feb 27 on Using Public Engagement to Inform the Use of Data in Biomedical Research. This workshop will contextualize how public feedback can help inform the use of new types of data (e.g., wearable devices, smart sensors, social media), new types of analyses (e.g., Artificial Intelligence and Machine Learning), and data linkage and aggregation in research. The information discussed will be used to help inform deliberations on the NExTRAC’s charge related to novel types and uses of data.  

The meeting will outline important themes from multiple community conversations NIH has hosted across the country on these topics. It will also feature discussions from ethicists, biomedical researchers, technology engineers and developers, public health experts, and clinician researchers who might utilize novel technologies to generate data. 

Opportunities to raise questions for discussion will be provided for members of the public who attend virtually.

Webcast

https://videocast.nih.gov/watch=49084

Agenda

Meeting Agenda

Background Information for the Workshop
Background Information for the Workshop (Spanish)

Community Conversation Summary Feedback
Community Conversation Summary Feedback (Spanish)

Workshop Participant Biographies

EVENTS MEETINGS

Join the National Academies of Sciences, Engineering, and Medicine on February 26, 2020 for a public workshop that will bring together stakeholders to discuss potential bioethical issues that may arise from new and emerging trends in biomedical research and society. The workshop will identify a range of current and emerging bioethical issues–both in basic and clinical research–and explore a broad range of stakeholder perspectives. The workshop will describe the state of the emerging science and potential pressing, recurring, emerging, and/or anticipated future bioethical issues in biomedical research and society that fall within the scope of the research and policy activities of the NIH. Potential topics may include: developing and integrating digital technologies into research and care; artificial intelligence and machine learning; emerging approaches for research and data collection; the impact of inequality on health, disease, and research participation; and the infrastructure for the bioethical research workforce.

Event Webpage

Registration (Webcast Only; In-Person Registration Closed)