The NIH will be holding a workshop on Feb 27 on Using Public Engagement to Inform the Use of Data in Biomedical Research. This workshop will contextualize how public feedback can help inform the use of new types of data (e.g., wearable devices, smart sensors, social media), new types of analyses (e.g., Artificial Intelligence and Machine Learning), and data linkage and aggregation in research. The information discussed will be used to help inform deliberations on the NExTRAC’s charge related to novel types and uses of data.
The meeting will outline important themes from multiple community conversations NIH has hosted across the country on these topics. It will also feature discussions from ethicists, biomedical researchers, technology engineers and developers, public health experts, and clinician researchers who might utilize novel technologies to generate data.
Opportunities to raise questions for discussion will be provided for members of the public who attend virtually.
Webcast
https://videocast.nih.gov/watch=49084
Agenda
Materials
(Some background documents have been provided in Spanish, as a community conversation was held in Spanish)
Background Information for the Workshop
Background Information for the Workshop (Spanish)
Community Conversation Summary Feedback
Community Conversation Summary Feedback (Spanish)