THIS EVENT IS RESERVED FOR PARTICIPANTS ATTENDING THE AMERICAN SOCIETY FOR HUMAN GENETICS (ASHG) ANNUAL CONFERENCE. YOU MUST BE REGISTERED TO ATTEND THE ASHG ANNUAL MEETING TO REGISTER FOR THIS SESSION
NIH has a longstanding commitment to making the results of NIH-funded research available. Sharing data accelerates biomedical research discovery, in part, by enabling validation of research results, providing accessibility to high-value datasets, and promoting data reuse for future studies. This session is intended to give an overview of NIH’s data sharing policies focusing on the NIH Genomic Data Sharing Policy and the NIH Data Management and Sharing Policy. This is a great opportunity for ASHG attendees to meet experts from NIH and ask questions about NIH data sharing policies.
Speakers: Cheryl Jacobs, Ph.D., Assistant Director for Genomics and Data Access, National Institutes of Health, Office of Science Policy and Danyelle Winchester Ph.D., Health Science Policy Analyst, National Institutes of Health, Office of Science Policy.
There is no cost to attend this event. However, pre-registration is strongly recommended. To register for the event, please provide the information below.
The National Institutes of Health (NIH) and the Center for Information and Study on Clinical Research Participation (CISCRP) will be hosting a virtual webinar and listening session as part of a larger effort on improving public engagement in clinical research. During this webinar, NIH and CISCRP will provide background on clinical research and research engagement, before opening to public comments as part of a listening session.
The Novel and Exceptional Technology and Research Advisory Committee (NExTRAC) will receive an update from the Working Group on Engaging the Public as Partners in Clinical Research and discuss the next steps regarding the current charge to the committee, delivered in August 2023 (Federal Register Notice).
Any interested person may file written comments by e-mailing [email protected] at least two business days prior to the meeting date. The statement should include the name, address, telephone number and when applicable, the business or professional affiliation of the interested person. Other than name and contact information, please do not include any personally identifiable information or any information that you do not wish to make public. Proprietary, classified, confidential, or sensitive information should not be included in your comments. Please note that any comments NIH receives may be posted unredacted to the Office of Science Policy website.
NIH will be hosting an informational webinar about its recent request for information (RFI) and draft proposal to incorporate patient access planning in the commercialization process for NIH-owned inventions.
Individuals and organizations interested in learning about the RFI and gaining a better understanding of the NIH Intramural Research Program’s patent licensing are encouraged to attend. Pre-registration is required.
Participants are invited to submit questions for NIH to address during the webinar. Participant questions may be sent to [email protected] and must be received by Friday, June 7, 2024.
