Genetics, Health, and Society

The Genetics, Health, and Society (GHS) program is responsible for policy analysis and coordination related to the development and use of genomic technologies and their implications for research, health care, public health, and society.  Current projects include activities associated with National Institutes of Health policies for sharing genomic data–the Policy for Sharing of Data Obtained in NIH Supported or Conducted Genome-Wide Association Studies (GWAS) and the draft Genomic Data Sharing Policy–as well as policy analysis and coordination of the governance of the Genetic Testing Registry (GTR).  From 1999 to 2010, the GHS program managed the operations of the Secretary's Advisory Committee on Genetic Testing (SACGT) and its successor, the Secretary's Advisory Committee on Genetics, Health, and Society (SACGHS).